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Rare

Fighting against scientific indifference, legislative gridlock, and the human cost of profit-driven markets, ten courageous individuals who struggle daily with rare diseases that have no known cure take action—harnessing the power of community, transcending adversity, and forging a new path forward for themselves and millions of others. “Rare” is a timely documentary that urgently addresses the overlooked issue of rare diseases. In today’s fast-paced world, where medical advancements are rapid, the film highlights the growing number of individuals affected by these conditions. By showcasing their challenges and resilience, the documentary underscores the need to prioritize treatments and cures, especially as profit-driven markets often overshadow human well-being. Against the backdrop of evolving healthcare systems, “Rare” sparks a conversation about equitable access to care and the ethical implications of neglecting these conditions.

Associated Members

Areeg Sweis, Independent Filmmaker

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We are grateful for the generous support of our sponsors:

Massachusetts Cultural Council
Lowel Cultural Council
Cabot Family Charitable Trust
Liberty Mutual Foundation
City of Boston Arts and Culture